meningioma · quilting

Good News (sort of)


Well, we got the go ahead on surgery tomorrow.  So, the tumor will be dealt with, once and for all.  However, the white blood cell count did not come down much, leading surgeon to believe it has nothing to do with infection, but possibly a bone marrow disorder of some type, such as leukemia.  So, surgery will proceed, and more testing will be done while in the hospital to determine what is going on with the blood count.  I’m hoping he is just having an extreme reaction to the decadron (steroid) they have had him taking.  He has had bad side effects from day one.  It will raise your counts, but not usually to the level of Greg’s.  That’s where we are now.  One thing at time.  And right now, it is goodbye brain tumor time!

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Some Good News!


For those that have been keeping up with my Mom’s progress in her fight against lymphoma, I have good news to report! Her followup PET scan was all clear…YAY!  The doctor says she is doing great.  She may not feel like she is all the time, but he says she is, and I’m hanging on to that! She will go next week for more Rituxim, (but no chemo) which she will have to have every three months for the next two years.  The next Monday, two weeks from today, she gets to have her port-a-cath removed.  Yay!!  Praise the Lord!

Tomorrow morning Greg will have his lab work redone, and we meet with the surgeon at 11:00 to go over the results.  We are praying for the white counts to be more normal, so surgery can proceed as (re)scheduled on Wednesday morning at 8:00.  I’m hoping Mom’s news is just the start of more good news to come.

Thank you all for your comments.  I usually answer each one via email, but here lately, I hope you all understand that I’m not getting that done.  I read them all, and they all mean a lot to me, and have encouraged me, and lifted my spirits.

Talk to you soon!

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Change of Plans


We got as far as pre-op today. They even got Greg hooked up to an IV. Then we got some upsetting news from the physician’s assistant. His white blood count is way too high. Then the surgeon came and told us no surgery today. That was hard to hear. Antibiotics now. New labs on Tuesday morning. If the counts come down then surgery will be Wednesday morning. Right now they are way too high. 28000. If they don’t come down, he will be admitted so they can pinpont the cause. The word leukemia was mentioned. I am praying for normal white counts on Tuesday ! Thank you to my readers and friends that are praying with us!

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Almost there!


We are almost to Greg’s surgery day.  We have to be at the hospital at 6:00 am, tomorrow morning.  I cannot express my appreciation enough to everyone that has been lifting us up in prayer.  We have literally felt them giving us strength.  I have been calmer and more peaceful these past two days, than I would have ever thought possible for me.  Truly, that is not the norm for me in a situation like this.  There is no other explanation for it than the prayers that are carrying me through. For my guild members reading this, thank you, thank you, thank you for Greg’s prayer quilt.  It is going to the hospital with us! He was so deeply touched by it.  I will get proper thank you’s out after we get all settled back down.  I will try to update as soon as I can.  Love to all!

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A Flimsy!


I managed to get my jelly roll quilt top finished this weekend.  It is now officially a flimsy! I would love to be able to manage to get the backing made, get it loaded and quilted, and binding made and attached, before Greg’s surgery.  That way, I could have some hand stitching to work on.  That’s probably being too optimistic, but maybe….

The pattern is All Boxed In by Heather Mulder Peterson.  It’s from her book Let the Good Times Roll.

The jelly roll was from the Glace fabric line, by Three Sisters for Moda.  They are Christmas themed, and I will quilt it with an allover Christmas panto.  Yay! I will finally have a Christmas quilt.  Surely I will have it finished by Christmas time this year.

If you are in need of a good laugh, (which I have been) and another online site to waste time, check out When Parents Text.  Be sure and click on the tabs at the top of the page, “archives”, “favorites”, etc. There are lots to go through.  I end up laughing so hard I cry at some of them.  Enjoy!

meningioma · quilting

Inside My Husband’s Head


Literally.  Now we have a visual of this unwelcome intruder inside Greg’s head.  The surgeon let me snap some quick photos of the MRI with my phone.   It is the blob between his eyes, and infiltrating the sinus cavity below.  We have our surgery date.  On January 28th, this thing is going to get eradicated! The surgeon feels very confident that he is going to be able to get him all fixed up! He may lose his sense of smell, and that’s sad…but, the least of what it could be.  We can live with that.

So, if you wish to see….

In this next set, I have drawn circles around the whole thing. The darker area in the bottom area of the tumor, in each photo, is the sinus cavity, that the tumor has infiltrated.  It has grown through the bone to invade that area.  The part that is mushrooming up is putting the pressure on the frontal lobes, and causing most of him symptoms.  It is causing swelling, especially on that right side where it has grown up farther.

The surgeon said he has treated one that had actually grown down the patient’s nostril.  At least Greg’s hasn’t gone that far yet! Looking at these photos, I can’t even imagine that.  I think I’m feeling a little more peace about it, and Greg seems somewhat  relieved this evening, as well.  At least we have a plan and a date!  Again, thank you all so much for the prayers and well wishes! I can’t express enough how appreciated they are and have been.

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Just A Quick Update


I know some of you are checking in here just for news about my husband and the brain tumor.  We are heading to Lubbock later today.  He has appointments tomorrow with the cardiologist and neurosurgeon, and if all goes as planned, we will leave with a surgery date.

I want to thank all of you for your comments, your prayers, and all the emotional support. It means more to me than you know.  It was so nice to see postings from my local quilting friends! Welcome to my blog!  I usually answer all my comments via email, but I just haven’t been able to do that on the last couple of posts.  So, I just want you all to know that I appreciate each and every one and it is so nice to read your comments.

I won’t lie and say that  this is not scaring the bejeebers out of me.  It is.  I am seeing changes in my husband every day. But, I am optimistically looking forward to a good outcome.  The sooner they get this thing out of his head, the better!  I will update here after we get back from Lubbock and have a plan in hand.

A special note to my quilt guild:

I know there are lots of great guilds out there, but I can’t imagine one any better than ours.  The camaraderie, love and sharing among our group is surely something special! I wanted to say something at guild last night, but I knew that I couldn’t get it out without starting to cry.  I always leave the meetings inspired, encouraged, enthused, and with just an overall warm and fuzzy feeling.  Not to mention overfed! 🙂  I love my guild!

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Sunday Stitch Report


Going back to regularly scheduled programming, I did get my “homework” done for next guild meeting.  If you just started reading, our challenge project this year is to do a BOM of your own choice.  I’m making the Fons and Porter Patriotic Sampler as mine.  To get it finished in the allotted time frame, most months I have to do more than one block.  This month, I did the large eagle block, and the star/vine applique block.  I was also able to start attaching some of the blocks to each other.

I deviated from the original pattern, twice on this row.  The original pattern calls for the eagle to be blue.  I wanted my eagle to be brown.  Also, the flag beside the eagle block is not like I sewed mine.  The original pattern has the star in the upper left corner, next to the eagle block.  That seemed “backwards” to me and my husband, so I flipped it for mine, and put it the way it would be if it were hanging down from a little flag pole.

I am not very proficient at the the machine satin stitching, or blanket stitching.  They could both be better.  But, the only way to get better is to do more of it.  I would like to take a class somewhere, someday…in the meantime, it is what it is.  Not great, but I’m ok with it.

It’s been an up and down last few days for Greg and me.  We just need to get this scary stupid brain tumor episode behind us.  Your logical self tells you it will all be ok, but the emotional part of you…well, that’s a whole ‘nuther story.  I must admit, it’s quite unsettling.  I want to thank everyone for their kind comments on my previous post, and the prayers and well wishes.  It means a lot to me and to Greg.

I want to share a blessing I received at the guild Christmas party.  Remember Sana’s quilt? I took it to her at guild, and she handed me a Christmas present to hang in my quilting room.  How cute, and how perfect for my quilting room.  Little sheep, and I love wool batting.  I hung it where I can see it often when I’m quilting.  Thank you, Sana…I love it! It makes me smile when I see it.

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What a Difference a Couple of Days Can Make in Your Life


I had planned on posting a new blog post Sunday.  I was going to blog about my current quilting projects, the guild party, etc.  Before that ever happened, about 10:30 Sunday morning, my husband had and “episode”.  He stood up from his recliner to go to the kitchen.  His right arm suddenly went numb, and I thought he looked “funny”.  He assured me he was fine.  Yeah, right.  He poured himself a glass of juice and went back to his recliner.  Within just a few more minutes, his chin became numb.  I grabbed my phone, called his daughter who is an RN, said something is wrong with your dad and I think we need to go to the ER, his right arm and chin are numb! And then I  ran to throw on some clothes and shoes.  I was still in my pj’s.  She got here, looked at him, and said yes, we were going to the ER.  His blood pressure was 199/133.  They found some bleeding in his brain, and said they were sending us on to Amarillo.  However, Amarillo did not have any neurosurgeons on call, so they ended up sending us to Lubbock.  In an Eagle Med plane.  Apparently, my husband is too tall for the helicopter.  Since he had to be flown by plane, I was allowed to fly along with him.  My stepdaughter drove to Lubbock, while my son, her husband and family stayed behind to take care of things at home, til we knew more.

At first, we were told that the bleed was probably caused by the blood pressure, which was at  a fatal level, and would most likely not require surgery. But, then one of the neurosurgeons physician’s assistant informed us that the brain bleed was about an inch away from where it should be, to be caused by the high blood pressure.  It just wasn’t in the right place.  So, Monday he would have an MRI and MRA.  They admitted him to ICU.  Monday, Lea and I were in the ICU waiting room, and the same assistant came to tell us that those tests revealed a mass in his sinus cavity, that looked to be an “angry mass”.  He said it resembled some big long word that I can’t even remember, but that it might be a meningioma, but he didn’t think it looked typical of one.  A few hours later, a neurologist came to meet with us and told us the tumor was not in his sinus, but behind it, deep (but not too deep) in the brain. Said it had probably been there several years, and the neurosurgeon would most likely do a biopsy or just remove it.  He said the neurosurgeon would come meet with us later that day, or the next.  We did not get to see him til yesterday morning.  Monday night was a long, painful night for me.  We so needed/wanted answers, and a plan.  Yesterday, the neurosurgeon, who we really liked, told us he is certain it is a benign meningioma.  (A meningioma is a tumor that arises from a layer of tissue (the meninges) that covers the brain and spine.  It is not IN his brain, but on the covering of the brain.  It is still a brain tumor, but a treatable one. It is in the center of his forehead, right above the top of his nose.  He said it has not only mushroomed up, causing swelling an inflammation in the frontal lobe of his brain, but has grown downward, infiltrating his ethmoid sinus cavity, as well.  That makes his case a little more complicated, but he was very positive and confident that he will be able to successfully remove the tumor with surgery.  It must be removed, or it will continue to cause inflammation in his frontal lobe, affecting moods and causing bizarre behavior, and will eventually interfere with his optic nerves, causing him to go blind. It will require a craniotomy, which is a bit intimidating and scary.  Because it has compromised the barrier between the brain and the sinus cavity, he will have to build a new barrier between the two, with tissue taken from Greg’s thigh muscle.  They will take some fascia and a little fat to close off the opening the tumor will leave, preventing sinus materials from going up into the brain, and prevent spinal fluid from going into the sinus.  He assured us they do these surgeries all the time, and Greg should have a good outcome.  He has to have a cardio evaluation, and meet with a pulmonary doctor, and meet with the neurosurgeon again, before he can be cleared for the surgery, which will probably be toward the end of January. A chest CT also showed some nodules and density in his lungs, that they want to watch, and will be having followup on that, after we get past brain surgery.  We got to leave the hospital late yesterday afternoon, and are back home, to enjoy Christmas together.  Right now, I’m just so happy to have him still here with me. That is the best Christmas present I can think of!

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Getting Ready to Party


Quilt guild style! Tuesday night is our annual Christmas party.  It’s a fun time.  We eat (really well), we do a fun Christmas fat quarter exchange, a “dirty Santa” ornament exchange, and play Quilto for various “prizes” contributed by the members.  There is always lots of laughter.  If you aren’t familiar with “dirty Santa”, it’s a gift exchange where you actually get to steal from each other, until a gift has been stolen a predetermined number of times, and then it is “retired” from the stealing, and the current holder gets to keep it.

If you are a member of my guild, you might want to stop reading now, if you prefer surprises. 😉 If not, keep scrolling for pics of my contributions to this year’s festivities.

The ornaments for exchange can be purchased, or homemade.  This year I decided to make one of the embroidered Christmas angels, from one of OESD’s past Christmas collections.  I love the way these turn out, and I hope she makes one of my fellow guild members very happy.

My Christmas fat quarters:

And my Quilto prize contribution is a pretty Moda charm pack, and a yo-yo maker.  You know, recently I fell in love with these yo-yo makers.

I can’t wait!